Cancer is a scary word, arguably the scariest word out there. Upon initial diagnosis, so many questions are unanswered and the future is unknown. With help from survivors, we have compiled a list of resources for those newly diagnosed. While this is just a start, it is our hope that these resources will help answer some of those unknown questions.
COLONTOWN is an online community comprised of other survivors and care partners, specifically designed to dismantle the taboo surrounding the topic of colon cancer. Here you can share your story and get advise/answer from other survivors who have been where you are.
Cancer Care is an online support center that offers counseling, support groups, education workshops, community programs, and even financial assistance.
What Next is another online support center that offers community forums, educational material, and support groups.
In the Charlotte area – Novant Health has developed the Buddy Kemp Cancer Support Center for an ‘in-person’ support community. Here they provide individual and family counseling, support groups, educational programs, survivor events – all in a home-like setting close to Presbyterian Medical Center campus.
Every year in March, the Colon Cancer Coalition hosts the ‘Get Your Rear in Gear’ 5K in Charlotte – dedicated to raising awareness and promoting screening. Their website also provides a wealth of information for newly diagnosed patients and their families, as well as some financial grants.
The American Cancer Society has an abundant database of information on everything relating to colon cancer symptoms, diagnosis, staging, treatments, surgery, etc. This database can be searched here.
NC Health Info has compiled a great collection of educational videos, a comprehensive database of colorectal surgeons, and even apps and tools for things like colonoscopy prep.
Lynch syndrome is an inherited disorder that increases the risk of many types of cancer, particularly cancers of the colon (large intestine) and rectum, which are collectively referred to as colorectal cancer. Read more about Lynch syndrome here.